It’s quite a journey at our house, helping a boy who is
pretty delayed learn and grow.
Some nights, around 3 am, I wake in an anxious panic, the
reality of Matthew’s challenges weighing heavily on my heart as I wonder scary
thoughts about the future. I could easily just omit this part of my blog post,
but I want to be honest in this space about the joys and challenges of our
parenting process with Matthew—so it’s only fair that I tell you sometimes I’m
really freaked out.
It’s not Matthew’s “special needs” in general that are
scary, but rather the energy and effort that it requires of Aaron and me to
parent him well so he can develop to his potential.
I know that all parenting takes energy and effort—I get it.
But I also think that unless you are parenting a child with special needs, you
probably have no idea just how hard it is. It’s hard because it’s all so
unknown—there is no “one day he will be doing ____” to cling to, because
everything is uncertain. It’s the repetition—where it would take a
normally-developing child 15 times to figure something out, it takes Matthew
30. It’s the steps backward—just when we think he’s moving forward using his
signs and a few words, he settles back into a kind of helpless blankness that
makes tantrums more frequent and raises frustration and confusion, both for him
and for us.
It’s never being able to take our eyes off of him—he’s
strong and capable of body, but his mind and language and understanding are
delayed, so we never know how he is going to react or interact with something.
Big questions loom: what if he gets hurt? What if he never grows up? What if he never leaves home? What if we spend the rest of our lives parenting a child
with very little skills?
Yes, these are the big questions and the worries that flood
this mama’s heart at three in the morning sometimes. These are the valleys that
are real and heavy and confusing for us on this parenting journey.
But then there are also the mountains. The moments when we
celebrate all that Matthew HAS learned, when we look to the future anticipating
he WILL continue to learn more and more as he develops and grows. It doesn’t
give us solid answers, but it does give us a kind of hope that keeps us
going—the light floods through the cracks into our dark places and reminds us
that we have so much around us to see us through this journey.
We have our faith and our belief, strange though it may
sound, that God called us to this adoption journey and gives us what we need to
see it through. We have our family, who walk beside us and take turns caring
for Matthew and see both the hard and the good moments with us. We have our
friends—especially those who understand challenge and loss in
parenting—adoptive parents, parents who have kids with special needs, parents
who have lost children. Although our journeys are different, these shared
experiences and common feelings are so encouraging to us.
And then we have our boy—who continues to delight us with
small moments of growth and development.
As we round the winter into spring, with summer ahead of us,
I’m so grateful for Matthew’s independence and love of the outdoors. I’m
grateful that he came home to a family who also loves being outside. When we
play outside together, that’s when I feel most normal as a family. Trails and
the woods and the backyard are all places where Matthew can exert all his
wonderful energy and explore and I know he won’t break anything (except maybe
his own bones). So we play outside a lot, and we anticipate doing more of it as
the weather gets nicer and nicer. A mountain for sure.
I know I should expect this journey to have its ups and
downs—in fact, I was pretty sure it would have some of both when we started it.
But the valleys are sometimes lower than I thought they would be. I suppose
that makes the mountains feel more significant too.
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