We are counting down the days until Matthew’s surgery, and we're almost there.
Tomorrow
(Thursday, August 16) is the big day. His surgery starts at 10:30 am, so we’ll
have to arrive at Seattle Children’s Hospital by 9:15. Aaron is going to stay
in Everett and see a few clients in the morning, so my mom will go with me and
keep me company until Aaron comes down to join us.
Matthew will be on the operating table for three hours with
an additional hour for recovering and coming out of the anesthesia. I think it
might be four of the longest hours of my life, but we’ll see. My mom is such a
good companion—so good at passing the ordinary and extraordinary moments of
time in a way that feels comforting to me—so I am quite sure that we’ll survive
the waiting.
I’m also blessed to have two good friends who work at
Children’s. Our friend Tauni is a nurse in ICU and she’ll be working both
Thursday and Friday. Our friend Heather has more of a nurse administrator role
(not exactly sure of her title) and she’ll be there too. Both of them have
promised to stop by and see us while we are at the hospital. Familiar faces
will be comforting too, I’m sure.
Matthew’s surgery will require at least a one-night hospital
stay. We are hopeful that we can come home Friday afternoon sometime. Our
church is bringing in meals four different nights starting on Saturday night,
so that will help ease things during Matthew’s recovery period too.
One thing we know for sure is that Matthew will have to wear
splints on his arms for several days (even weeks, perhaps) so that he can’t put
his hands in his mouth. He’ll have stitches on his lip and below his nose
externally, and he’ll also have some internal stitches.
When we met with Dr. Tse (our surgeon) last week, he drew us
a picture on a piece of paper of what he’ll be doing during surgery. Aaron
commented on just how STEADY his hand was while drawing—this gave us a huge
boost of confidence in his steady hand for surgery on our boy too. I think we’re
in the best hands possible—literally!
We would love your prayers and thoughts for a successful
surgery and a speedy recovery for Matthew. I think our whole family could also
use an extra dose of patience and energy as we help Matthew through the
recovery time. We’ve heard it can be kind of rough (of course, only in the
short term!) on some families as they help their child manage pain and deal
with all the obstacles (the splints being one of them) that come after surgery.
Next Tuesday, we’ll go back to Children’s where Matthew will
go under anesthetic again and have his sutures removed. I’m hoping that at
least by then, we are back to functioning in a fairly regular way.
I WILL be updating the blog a few times tomorrow, hopefully
with a couple of photos each time, so that family and friends who are
interested can hear how things are going. We don’t anticipate anything abnormal
or dramatic occurring—the Craniofacial Center at Children’s does cleft lip
repair surgeries all the time (truly) and for them, this is a routine
operation.
We also keep reminding ourselves what a good step this is
for Matthew; he’s bonding to our family and developing all kinds of skills, but
he needs his lip repaired to begin speaking words and to start moving toward
optimal health.
One last thing to say—I continue to be amazed and
overwhelmed with love for this little boy who has already overcome so many
obstacles, lived through a significant transition, and continues to thrive in
life and development. He is an incredible example to me of the resiliency
possessed by the human spirit. This kid WANTS to develop and grow, and now that
he has a supported environment, he’s taking off! This step of the process is so
important for him, and I know he’ll bring his same strength and courage to it.
I’m trying to learn from Matthew—to take my courage from him—so
that I too might be a courageous mama, brave and loving and patient through it
all!
We will be sending you all our love from this side of the state and checking your blog to give you virtual hugs as we can. Courage to you and your family tomorrow! xoxo
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